November 8 to 24 written November 9+
Dear Diary, Friends, and Families,
I ended the last diary describing Marianne's victory over the pacemaker
implant side effects: chest pain, headache and inability to sleep
the night. Friday morning, after she had slept the whole night, I
said: "I'll take
that as very encouraging". And it was.
When she did get up on Friday, Marianne was a changed person, full of
cheer and energy and we jumped into catching up with normal
activities. One saga for some time has been our car
situation. We are still driving the eleven-year-old Audi we
brought back from Germany. A bad economic decision, but that's a
different story.
The plan has been to replace it with a "biggish" SUV, something to use
exploring America. We looked at the various General Motors
offerings, but could not get enthusiastic. We also considered a
couple of Japanese SUVs, but decided they were just too simple for
our Grand American Tour. Finally, we decided on a Jeep
Grand Cherokee, biggish, but with a surprisingly fuel
efficient diesel engine.
A few months ago, we even went through the process of buying one that
the local dealer had in stock, only to renig on the deal the next
morning when we recognized they had sold us the car they wanted
to sell, not the one we wanted to buy. The solution was to order
one just like we wanted: red, tan interior, diesel engine, and almost
all the extra gadgets.
Unfortunately we had chosen a car that was not being made quite
yet. The diesel engines come from Italy, the 8-speed
transmissions from Germany, and none were currently available in the
Detroit factory. It took almost two months for the situation
to change and allow our order to be processed. It has been
another two months since then, and we still have no confirmed
ETA. Rumors at the dealership are that manufacturing is starting
"soon", but meanwhile, the old Audi needs a transfusion of new parts
every few weeks, so this waiting is particularly painful.
To make sure we have enough buyer's discomfort, we also decided to
go ahead and buy car #2. In this case, it would be a "nice",
smallish car. This time we stuck with German cars, because that's
what we know, I suppose. I wanted the VW (Golf) GTI, a peppy small
car more commonly bought by young drivers. On the second test
drive, Marianne was finding enough things wrong that it was clear that
the GTI was not in our future. We moved on to the Mercedes Benz
GLA250, the deluxe brand's low-end SUV. A nice car, but this time
I objected, partially for the relatively high price and secondly just because
old people buy MBs. I'm not ready for the stereotype.
In the end, we looked around the Audi-Porsche dealer on one of our
repair visits. What we REALLY wanted was a Porsche. How
about this one?:
For
about a million dollars, one can get on a three-year waiting list for a
Porsche 918. Our local plumbing supply dealership owner did just
that and, for a few days, he allowed us mere humans to look at his
900-horsepower hybrid - a Prius sort of.
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No, instead we settled on an Audi Q3, another smallish SUV. Once
again, we wanted a version not currently in stock, so we placed yet
another order. This time, delivery was estimated at three
months. (Engine from Hungary, car from Spain). No
problem. We are patient buyers. I just hope the old Audi
stays adequately reliable. We'll see.
Meanwhile, how is Marianne
doing? She was wonderful on Friday (7th) and had the energy to
finish buying the Q3, take Mamo to dinner, and sleep peacefully through
the night. Saturday morning, just after breakfast, the underlying
heart arrhythmia problem reared its ugly head and it was trip #6 to the
Kaiser Emergency Department, by ambulance this time.
By
now, we know the ED (ER) staff and they know Marianne enough that testing
for problems she does NOT have were skipped. Because her heart rate
would not settle down, she was sent upstairs to a regular room "for
observation". On Sunday she got a change of heart regulation drugs, but
I think Gabby's visit did more for her heart than the new chemicals.
Monday and Tuesday are a bit of a blur (I am writing this a couple of
days later, but it seems like a week.) The cardiologist explained
options and, after considerable thought, we chose a path forward.
First, the doctors will try to reset Marianne's heart rhythm with a
procedure called "cardioversion", where a shock is administered to
momentarily stop the heart and, in over 90% of the cases, the heart
restarts in normal rhythm. We wanted this done ASAP, but nurses
at Kaiser went on strike Tuesday and Wednesday, so the medical team
preferred to delay. As of Thursday morning - 13th, we have no
date, but we have emphasized "ASAP" and we expect to hear today.
The second step will be a procedure called atrial ablation, an
operation where misbehaving heart circuits are ablated (burned) into
submission. This is a fix that should be permanent, although in
the medical world it seems nothing is guaranteed. Marianne needs
to be on blood thinners for 4 to 6 weeks before it would be done, so
that preparation period sets an ablation schedule for mid to late
December.
We'll see, maybe in early 2015 we
will have one or two new cars and a newly-refurbished heart.
Stay tuned.
John and Marianne
ps: Yesterday (12th) I took a break and wandered around the yard
and neighborhood. Our roses are looking great, after almost dying
in the summer heat, and the local trees are showing their fall
colors. As we watch winter settle in east of the Rockies, I think
we have it ok here in Fresno - so long as the health-thing works out.
pps: Marianne update (Morning of Nov 22)
Nine days after the last entry and what's been happening? We
received a schedule for the heart re-set, December 5, that we thought
was much later than "ASAP". Nevertheless, it was at least
planned. As with most of our plans, that's not what
happened. Thursday night (19th) we sent an email asking if the
cardioversion procedure could be moved up, because Marianne was
remaining weak and in some pain. Friday morning, she was too weak
to stand and, again, we dialed 911 and the ambulance took her off for
her seventh visit to the Emergency Department.
(I
followed, but got to the ED in the middle of the hospital's "Ebola
training". While I had to wait, I asked the drill manager if
Fresno Kaiser has ever had anyone answer "yes" to the now-ubiquitous
question: "Have you traveled to West Africa in the last three
weeks". "No", he said, but the drill is useful for any sort of
contagion outbreak, I suppose.)
When I was allowed back to ED room 3, Marianne was better, or maybe
just less bad. The ED team went though all the normal routine: EKG, iv,
a bit of oxygen, some fluids. At some point, we checked email
(it's what one does nowadays) and discovered that the cardiologist had
indeed answered and said that the only way to move up the cardioversion
was to show up in the Emergency Department. So, we answered that
we were there already, Room 3.
The procedure went quickly. By 10:20, all was set up around the
emergency room bed (cardiologist, anesthesiologist, ED nurse, echo
cardiogram tech, and the red bag with the electric leads to connect to
two pads Marianne was now wearing.) I left, the
professionals did their jobs, and I was back in 30 minutes to see
Marianne's nice, regular heartbeat on the monitor. Less than two hours
later, we were home and updating relatives and neighbors about
the day's events. It looked good.
On
Monday (Nov. 24), Marianne had a phone consultation with the doctor who
should
perform the ablation procedure down in Santa Clara. We learned a
lot about the condition "atrial fibrillation" and the various means to
control the condition. Currently, Marianne's heart rate has been
restored by shock, and is being kept regular chemically. "Over
control" by the drugs (ie: slowing the heart too much) is prevented by
the new pacemaker.
The next level of control will be "ablation" or destruction of heart
nodes and circuits that cause irregular and fast heart beats. The
Santa Clara cardiologist specialist answered our questions and defined
requirements before the procedure could be done. First, the
inflammation around Marianne's heart needs to go away. That could
take weeks or months. Second, the pacemaker leads need to "age"
another couple of months, until they are more firmly anchored.
Finally, the Santa Clara facility has a two to three month waiting
list. All this points to an operation date sometime in March or
so.
We will keep
family and friends up to date, but for now we will concentrate on other matters (I hope!)
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